Lunch for Limbs: A family’s journey created support for research into rare limb conditions

Daniel and Lisa Giannini’s inaugural Lunch for Limbs fundraising event on November 16, 2025 was an opportunity to both honour their son’s resilience, as well as to pay tribute to the health-care professionals advancing care for the thousands of children in Ontario diagnosed with musculoskeletal disorders each year.
The couple recalls their disbelief and panic upon learning late in Lisa’s pregnancy with their son, Giacomo, that he would be born with fibular hemimelia. A congenital disorder, fibular hemimelia occurs when the bone in the lower leg that extends from the knee to the ankle, the fibula, does not develop properly. This results in a significant difference in leg length, as well as differences in the knee and foot, limited motion and difficulty walking.
“As a parent, you feel so much pressure to have all the answers and to make everything okay for your kids,” Lisa says. “It’s overwhelming – you’re really relying on your child’s medical team to help you navigate all of this.”


